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Welcome to the MAC Lung Disease information site. |
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This website is about Mycobacterium avium complex (MAC) lung disease in non-HIV infected patients. It is directed at patients with MAC lung disease or those who want to know more about the disease. It is written by physicians and investigators at the University of Texas Health Center who deal with these patients and their disease on a daily basis.
The website is designed to be informative and encourage you to be part of the solution of MAC lung disease. It is a disease about which little is known, with more questions than answers. We believe in a scientific approach to these questions through clinical trials such as we have performed in the past. Without participation of patients and supporters, we will continue to struggle with the information gap that is such a frustrating part of this disease.
Richard J. Wallace, Jr., M.D.
Chairman, Department of Microbiology
John Chapman Professorship in Microbiology
University of Texas Health Center at Tyler
Join Us:
NTM Info & Research, Inc. (NTMir) will hold its third annual education and advocacy event in Washington, D.C. March 3-4, 2008.
ParticipACTION 2007 was a huge success, spurring greater action by physicians and patients as well as raising greater awareness among congressional members and staff of the need for funding for pulmonary NTM disease research and physician education.
ParticipACTION 2008 will provide more patient education, training for our congressional meetings, and an opportunity for patients and physicians to ask Congress for funding for NTM research, physician education and patient trials. Join with us for an uplifting, educational and important event to ensure that our voices are heard throughout the halls of Congress.
For Additional Information on the Event, Click Here
http://www.ntminfo.org/default_aspx/p/events_participaction_2008.aspx
How to Become a Patient at UTHCT
Your primary care physician, pulmonologist or infectious disease physician can refer you to the UTHCT. Please fax the following information to the Referrals Department at (903) 877-2871:
1. Results of sputum cultures for AFB (including the first positive AFB and the last two years of cultures for AFB).
2. Results of susceptibility tests on positive AFB cultures, if available.
3. Results of routine sputum cultures from the past 12 months, if available.
4. Clinical or physician notes (or medical records) that describe your drug treatment, results of bronchoscopy or chest CTs.
The patient should bring (preferably on a CD) the following documents to their clinic appointment:
1. The most current CT scans of chest (past 1-2 years) with written interpretive reports.
2. The most current chest x-rays with written interpretive reports if chest CTs are not available.
Questions should be referred to (903) 877-7171. |
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